1) Monitor the correct execution of the working plan at scientific and financial levels.
2) Detect potential deviations or risks and take necessary actions to solve them.
3) Take decisions related to the project execution, budget modifications, annexes to the Multilateral Consortium Agreement and any other relevant aspect of the project.
The project coordinator, Dr. Manuel Manrique, Dr. Heredia and Dr. Barros from Centro Hospitalar Lisboa Central (CHLC)
MEMBERS OF THE SCIENTIFIC COMMITTEE:
Universidad de Navarra: Dr. Manuel Manrique (project coordinator),
Dr. Ana Patiño- Biodonostia: Dr. Xabier Altuna, Dr. Zuriñe Martínez Basterra.
– Instituto de Salud Pública y Laboral de Navarra: Dr. Nieves Ascunce
– CUF Oporto: Dr. Vitor Correia da Silva, Dra. Carla Pinto Moura, Dra. Conceição Peixoto
– Centro Hospitalar Lisboa Central, EPE: Dr. Ezequiel Barros, Dr. Heredio Sousa
– CHU Toulouse: Dr. Bernard Fraysse
– CHU Montpellier: Dr. Michel Mondain
– Dreamgenics: Dr. Gonzalo Ordoñez
It is a private university based at the southwest border of Pamplona, Spain. It confers 56 official degrees and administers more than 90 postgraduate programs through 10 schools, 2 superior colleges, the IESE Business School, 2 University Schools and other centres and institutions. The University Clinic of Navarra (CUN) is one of the leading private medical institutions in Spain, with over 500 medical doctors and over 700 nurses, offering all major medical and surgical departments. Since 1962, it has attended over 600,000 patients. The Department of otolaryngology is made up of 10 ENT specialists involved in research, 4 residents, 3 technicians, 5 PhD students, 6 nurses, 5 audiologists, 2 hearing aid specialists and 2 speech therapists. Clinical research projects range from universal neonatal hearing screening, early pediatric cochlear implantation, auditory plasticity, asymmetric hearing loss, minimal invasive cochlear surgery, Meniere disease, intratympanic treatments and hearing loss in elderly people. Two of the strongest research lines in collaboration with other University departments are hearing loss and balance disorders. The scientific team who will be working in GHELP is composed by: Dr. Manrique. Dr. Gorka Alkorta, Dr. Ana Patiño, Dr. Raquel Manrique, Dr. Alicia Huarte and Diego Calavia. Itziar Gomez will work as financial manager.
Instituto de Salud Pública y Laboral de Navarra Calle Leyre, 15 31003 Pamplona ESPAÑA www.isp.navarra.es
ISPLN is a technical assistance center. It depends directly from the General Health Directorate of the Navarra Government in Spain. It is specialized in health promotion and surveillance, prevention and intervention on collective health problems. ISPLN is structured into 5 services. The Early Detection Section, devoted to cancer and neonatal screening programs, depends directly from the Epidemiology and Health Prevention Service. The ISPLN’s team working in GHELP will have the following members: Nieves Ascunce Elizaga and María Ederra Sanz, both medical specialists in Public Health; a medium grade technician and an administrative assistant.
Asociacion Instituto Biodonostia Paseo Doctor Begiristain 20014 Donostia
San Sebastian ESPAÑA www.biodonostia.org
It is the first Institute for Health Research in the Basque Country. The Institute preferentially boosts translational research focusing on the patient. It covers all research carried out in Gipuzkoa region within the framework of the Basque Health Service (Osakidetza). Its heart is the Donostialdea IHO (Integrated Health Organisation) who will work in GHELP as third party of the Institute. This hospital is necessary because the scientific activities must be carried out by the clinical personnel of the Department of Otolaryngology-Head and Neck Surgery of the Hospital. Donostialdea IHO is the reference hospital for the Newborn Screening in Gipuzkoa with more than 6000 births/year. It is also a reference centre to perform cochlear implantation for the Basque Country and La Rioja regions. The scientific team working in this project will be composed by: Dr. Xabier Altuna, head of the Otolaryngology-Head and Neck Surgery Department; Dr. Zuriñe Martínez and Dr. Jorge Rey Martínez. María Isabel Arzamendi will be in charge of administrative and financial reporting to the SUDOE Programme.
It is a bioinformatics & genomics company based in Oviedo, born as spin-off of the University of Oviedo. DREAMgenics has 3 main areas of expertise: Bioinformatics services for Next-generation Sequencing technologies; Design and development of Bioinformatics software and Molecular diagnostic tools based on NGS technologies. DREAMgenics’s team in GHELP project will have the following members: Gonzalo R. Ordóñez and Patricia Cueto Pruneda (at scientific level) and Cristina Sainz Alba (at financial level).
Hospital CUF Porto, S.A Estrada da Circunvalação 14341 4100-180 Porto
It is a private for profit entity located in Porto, Portugal. It is part of the net of CUF hospitals in Portugal. It is a new hospital opened in 2010. The Otolaryngology Department counts with 11 specialists. CUF PORTO’s team in GHELP project will be composed by 3 Otolaryngologists: Dr. Victor Correia da Silva, Dr. Carla Pinto Moura and Dr. Conceição Peixoto;
Centro Hospitalar Lisboa Central, EPE R. José António Serrano 1150-199 Lisboa
The ENT department of the Centro Hospitalar de Lisboa Central (CHLC) is a national reference in the early diagnosis of deafness and auditory rehabilitation. It has about 800 pediatric users subscribers. It also integrates the National Hearing Rehabilitation Program through cochlear implants. (Clinical Guideline of DGS on cochlear implant in publication.) Dr. José Ezequiel Barros will coordinate the activities of the entity in the project. He is the director of the ENT department CHCL and an active member of
the French Society of Otorhinolaryngology, the American Academy of Otolaryngology and the Portuguese Society of Otorhinolaryngology.
Centre Hospitalier Universitaire de Montpellier Direction de la Recherche et de l’Innovation 191 Centre Administratif André Benech, Avenue du Doyen Gaston Giraud
34295 Montpellier FRANCE
The ENT department of the University Hospital of Montpellier (CHUM) is a regional reference in the early diagnosis of deafness and auditory rehabilitation. Dr. Mondain is responsible for the team otorhinolaryngology and pediatrics.
Centro Hospitalar Universidade de Toulouse
9 Place Lange
31059 Toulous FRANCE
The University Hospital Center of Toulouse (CHU) is the reference center of the French region of MidiPyrenees for the diagnosis and treatment of childhood hearing loss. The hospital has more than 3,500 clinical trials. The Prof. Bernard Fraysse will be the coordinator of this entity’s activities in GHELP.